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  • The patient experience has to change

  • It's time patients had a say

  • Help us make your experience count

We are a patient-led, patient-governed organization dedicated to bringing the patient voice to healthcare


News & features

The big picture

June 2014
A young caregiver shares her voice
Jun 25, 2014 11:42 AM

This year Sara Shearkhani's husband was diagnosed with cancer and she became his caregiver. Over 2.5 million Canadians are caring for a chronically ill or disabled loved one, and still caregivers are overlooked and their insight underestimated.

Sara bravely shared her feelings about the marginalization of caregivers in an article published by The Globe and Mail and proved that we have much to learn from the experiences of caregivers.

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ALL, Stories about caregiver experiences  

Review: The Secret Language of Doctors, by Dr. Brian Goldman
Jun 11, 2014 11:17 AM

Most of our workplaces and professions have their own language and slang that enable us to communicate quickly and provide us with insider status. Doctors are no exception.

The Secret Language of Doctors by Dr. Brian Goldman, host of CBC Radio's White Coat, Black Art, does more than offer an insider's list of medical slang, it offers a candid look at the attitudes and issues that shape our healthcare system, particularly within hospitals.

Click here for a transcript of our #AskDrBrian Tweetchat with Dr. Brian Goldman.

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ALL, About the healthcare system  
May 2014

The experiences of long-term care for seniors and people living with disabilities
May 29, 2014 10:27 AM

OPEN MEETING: On May 22nd we shared experiences about long-term care for seniors and people living with disabilities. Two themes emerged:

1. The problem of under-staffing in both community and long-term care homes - did you know there is no mandated staff/resident ratio?

2. The need to shift to a culture where seniors and people with disabilities are treated with respect and dignity

We also looked at which targets or indicators could measure the quality of the patient experience in a long-term care facility. As a result of this conversation we have set up a working group to look into this issue.

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ALL, Our Open Meetings  

The Change Foundation's report "Catch 22" Report 2: People's experience going to long-term care after being hospitalized (1.21 MB, PDF) describes experiences with transitions from hospital to long-term care for seniors and their families with a special focus on deficiencies of the process.


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  • participated in a Patient-centred Outcomes Research Institutes meeting
  • participated in a discussion on developing a patient partnership strategy for the Ontario Support SPOR unit
  • represented Patients Canada in a Technology Evaluation in the Elderly Network (TVN) meeting

Tell us how you're bringing the patient voice to healthcare. Email us at communications@patientscanada.ca

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