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  • The patient experience has to change

  • It's time patients had a say

  • Help us make your experience count

We are a patient-led, patient-governed organization dedicated to bringing the patient voice to healthcare

 

News & features

The big picture

July 2014
'Healthy privilege' - when you can't imagine being sick
Jul 24, 2014 10:24 AM

As the number of ehealth applications rises, there appears to be a growing divide between who developers think are using their products ('healthy, fit, not-sick!'), and actual patients. Although their designs help to manage patients' increasingly complex health needs, new applications cater to the 'worried well' - people who can easily learn the technology, who are free from pain and who can consistently track symptoms - versus actual sick people.

 

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ALL, Digital health and patients  
  
June 2014

A young caregiver shares her voice
Jun 25, 2014 11:42 AM

This year Sara Shearkhani's husband was diagnosed with cancer and she became his caregiver. Over 2.5 million Canadians are caring for a chronically ill or disabled loved one, and still caregivers are overlooked and their insight underestimated.

Sara bravely shared her feelings about the marginalization of caregivers in an article published by The Globe and Mail and proved that we have much to learn from the experiences of caregivers.

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ALL, Stories about caregiver experiences  
  

Review: The Secret Language of Doctors, by Dr. Brian Goldman
Jun 11, 2014 11:17 AM

Most of our workplaces and professions have their own language and slang that enable us to communicate quickly and provide us with insider status. Doctors are no exception.

The Secret Language of Doctors by Dr. Brian Goldman, host of CBC Radio's White Coat, Black Art, does more than offer an insider's list of medical slang, it offers a candid look at the attitudes and issues that shape our healthcare system, particularly within hospitals.

Click here for a transcript of our #AskDrBrian Tweetchat with Dr. Brian Goldman.

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ALL, About the healthcare system  
  
 

The Change Foundation's report "Catch 22" Report 2: People's experience going to long-term care after being hospitalized (1.21 MB, PDF) describes experiences with transitions from hospital to long-term care for seniors and their families with a special focus on deficiencies of the process.

Opportunities

Workshop on patient & caregiver engagement

We want to hear from you! On August 20th, you're invited to attend a workshop to share findings on patient and citizen engagement in health care research, policy and decision-making. Learn more...

Hosted by Technology Evalution in the Elderly Network (TVN) in partnership with Patients Canada.

 

  • participated in a Patient-centred Outcomes Research Institutes meeting
  • participated in a discussion on developing a patient partnership strategy for the Ontario Support SPOR unit
  • represented Patients Canada in a Technology Evaluation in the Elderly Network (TVN) meeting

Tell us how you're bringing the patient voice to healthcare. Email us at communications@patientscanada.ca

To read our older posts, go to Learning Centre > News & Features.

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events

Aug-20-2014
12:00 PM – 3:30 PM
Workshop on Patient & Caregiver Engagement

Aug-25-2014
4:30 PM – 6:30 PM
Long-term care working group

Aug-26-2014
4:30 PM – 6:30 PM
Key Performance Targets for Patients Centred Care

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