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The patient voice in research

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Historically, most health research has been selected, directed, implemented and evaluated by clinicians and researchers. However, the tide is turning and health researchers and funders are beginning to understand the value of involving patients as partners in research. By engaging patients directly, the research community is ensuring that patient priorities are represented in the future of health research.

We work in a variety of capacities

  • we collaborate with health researchers to help them understand the patient perspective
  • we provide the patient perspective on the development of health-related technology
  • we participate in the evaluation of health research

We are currently involved in a number of research proposals, and we are active in the evaluation of research on an ongoing basis.

Technology Evaluation in the Elderly Network (TVN)

TVN is one of Canada's Networks of Centres of Excellence (NCE) supporting multidisciplinary research related to healthcare tools, technology and interventions for seriously ill elderly patients and their families.

TVN is committed to involving patients in the development of research priorities and in the evaluation of the research proposals submitted. Both their Board and the Research Management Committee includes a mix of professionals, community members and patients.

Patients Canada is pleased to have a member on the Research Management Committee.

Our Research Management Committee member

  • Alies Maybee, member from Fall 2012

 

 

Aging, Community and Health Research Unit (ACHRU)

Funded by the Canadian Institutes of Health Research (CIHR) and the Ministry of Health and Long Term Care, this five-year research program aims to develop and evaluate the effectiveness of different community-based primary care approaches to promote optimal aging for seniors living with multiple chronic conditions, as well as their caregivers.

The study results will help to make meaningful changes to the way seniors manage their health.

Patients Canada participates in the following ways:

  • by offering insight to the experiences and challenges facing seniors with multiple chronic conditions, as well as their caregivers
  • by identifying the gaps in care related to coordination, transitions and resources for self-management
  • by helping to design community-based primary care interventions to support seniors with multiple chronic conditions
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By email:

@patientscanada.ca

By phone:

(416) 900-2975

Our partners

Technology Evaluation in the Elderly Network

Sholom's blog