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Caregiver stories

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The unsung partners

Family caregivers are the unsung partner in a patient's care team, yet their enormous contribution to the health care system is often overlooked. As they move through the health care system beside their loved one, family caregivers experience firsthand the gaps in care and poor transitions between care settings. We have much to learn from the experiences of family caregivers.

Caregiver and patient - Make your experience count

 
October 2015
Oct 22, 2015 2:00 PM

Told from a family caregiver's perspective, this experience points to specific ways a hospital emergency department could have been more 'people-centred.'

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All stories, All patient stories, All caregiver stories, Hospital and acute care  
  
June 2015

Jun 30, 2015 3:44 PM

A father explains how his 18 month old daughter's hand injury turned into +50 hours in the emergency department, and how poor communication and suboptimal care made his family feel unheard and ignored.

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All stories, All caregiver stories, Hospital and acute care, Patient-provider relationship  
  
June 2014

Jun 13, 2014 1:07 PM

Anthony shares his patient experience in various intensive-care units and trauma centres as the result of a near-fatal motorcycle accident.

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All stories, All patient stories, Hospital and acute care  
  
January 2014

Jan 17, 2014 11:01 AM

This patient story reveals problems with episodic, uncoordinated emergency room care for a patient with chronic disease.

What we learned:

1. The ED treats people in isolation of the patient history or a follow up plan
2. ER treatment must be integrated into the patient’s history and go-forward care plan
3. The ED people are not trained to deal with or concerned with patient anxiety

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All stories, All patient stories, Hospital and acute care, Patient-provider relationship  
  
September 2013

Sep 10, 2013 2:04 PM

This story is shared in the form of a letter. This experience left a patient without post-operative medication and proper care, and as she describes it, 'in summary, hell from beginning to end.'

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All stories, All patient stories, Hospital and acute care  
  
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