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Caregiver stories

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The unsung partners

Family caregivers are the unsung partner in a patient's care team, yet their enormous contribution to the health care system is often overlooked. As they move through the health care system beside their loved one, family caregivers experience firsthand the gaps in care and poor transitions between care settings. We have much to learn from the experiences of family caregivers.

Caregiver and patient - Make your experience count

 
July 2016
Jul 4, 2016 9:00 AM

Shared from the perspective of a spouse, a family caregiver. Her husband spent his final days cared for in their home, exactly where he wanted to be.

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All stories, All patient stories, All caregiver stories, End-of-life care, Positive experience of care  
  
March 2014

Mar 25, 2014 10:59 AM

This patient story is told from a spouse's perspective as he navigated Ontario's healthcare system alongside his wife as she received treatment for a rare form of leukemia. It highlights some of the challenges facing patients living with chronic conditions, such as poor coordination of care and gaps in communication.

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All stories, All patient stories, All caregiver stories, Patient-provider relationship, End-of-life care  
  
October 2013

Oct 28, 2013 8:44 PM

This was a hospital horror story. All the patient wanted was peace and comfort.

What we learned:

1. Were the patient and their family members included in the performance assessment of their primary healthcare providers?
2. Did the care team collaborate with the patient and the caregiver?
3. Did hospital management assess how the staff members perform their duties?
4. Is there a survey given to patients that would include assessment of compassion, transparency and privacy?
5. Is there an independent patient relations agency to advocate for patients?
6. Does the hiring committee include patients and family caregivers?
7. Is management involved with patient quality feedback?
8. Did staff have a sit-down discussion with the patient and their family members once they were aware the patient was dying?
9. Did staff write their names on the white board in the patient’s room? Did they introduce themselves if they were new to the patient?

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All stories, All patient stories, End-of-life care  
  

Oct 28, 2013 8:29 PM

This patient story is told from the perspective of a daughter. She explains how her once independent and intelligent mother underwent mental and physical deterioration at the hands of dementia.

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All stories, All caregiver stories, End-of-life care, Degenerative disorder  
  
September 2013

Sep 12, 2013 7:44 PM

'So why did I finally plan to die? And was I depressed when I did so? I felt that the coming years could only bring me more pain – physically and emotionally.'

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All stories, All patient stories, End-of-life care  
  
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