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Patient partnership

Learn about websites and resources offering meaningful information about and in support of patient and family caregiver engagement as partners in healthcare.

The Experience-Based Co-Design Toolkit is an approach that enables health care professionals and patients (or other service users) to co-design services and/or care pathways, together in partnership. The approach is different to other service improvement techniques.

Created by the King's Fund, this toolkit includes short videos from health care professionals and patients involved in EBCD projects to help bring to life the successes and intense rewards of running this type of improvement project. It also includes downloadable resources such as template forms, letters, presentations and other materials that support successful implementation of this approach.

This glossary of health equity terms was created by the National Collaborating Centre for Social Determinants of Health in response to practitioner requests to promote the use of clear and effective language – within public health and across sectors and regions in Canada – in order to enhance powerful communication and action on the social determinants of health and health equity.

Involving patients in setting priorities for healthcare improvement looks at how  although patient involvement in individual clinical decisions has been extensively studied, no trial has assessed how patients can effectively be involved in collective healthcare decisions affecting the population.

The goal of this study was to test the impact of involving patients in setting healthcare improvement priorities for chronic care at the community level.

This 'Jargon Buster' glossary, created by the Canadian Institutes of Health Research (CIHR) provides lay language definitions for frequently used health research terms. The terms accompanied by a 'SPOR' icon (Strategy for Patient-Oriented Research) have been defined in the context of this national SPOR project.

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Let's Discuss Family Presence looks at the value and impact of including patients' loved ones as partners in their health care team, and how to start this conversation in your local hospital as a patient or health care professional.

Let's Discuss Family Presence PDF518 KB

Meeting with Patients: Their Experiences and Perspectives is a report by Patient Destiny's Kevin Leonard and colleagues. It documents the experiences and perspectives of 40 patients, clients and caregivers who receive health services in the Toronto Central Local Health Integration Network (LHIN), an Ontario government regional authority, December 2011. They were invited to share personal healthcare experiences and to offer ideas and suggestions for improvements and change. The goal was to gather information, insights and advice from those who use the healthcare system to inform planning and decision-making at the local level.

Meeting with Patients PDF1.2 MB

Telehomecare, a Ontario Telemedicine Network (OTN) program, uses technology to bring chronic disease patients the care they need, right in their home.

Telehomecare Nurses monitor each patient's health status remotely, offering education and health coaching. The patient's primary care provider is kept informed with ongoing updates.

Patient Engagement Heard and Valued: A workbook for meaningful engagement of patients that have not traditionally been heard in healthcare planning was created to help health care decision makers to plan, implement, and evaluate patient engagement processes with a focus on engaging patients whose voices have not traditionally been heard in healthcare planning, such as immigrants and refugees, those of low socioeconomic status, or people dealing with mental health and substance use issues, just to name a few groups.


The Patient Engagement Resource Hub, developed by the Canadian Foundation for Healthcare Improvement (CFHI) includes Canadian and international open source tools that can be useful in patient and family ngagement initiatives to improve health and healthcare.

Patient Voices Network is a is a community of BC patients, families, caregivers, and friends who are collaborating with health care providers to bring change and improvement to the health care system. Managed by BC Patient Safety & Quality Council, it provides coaching and collaboration with health care partners related to quality improvement and public and patient engagement. It advances improvement by engaging public, health care and government to work as partners in building a sustainable health care system in BC.

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