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Patient stories

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Stories can lead to change

Your health care experiences reveal authentic patient priorities, including

  • Where health care design or delivery could be improved
  • What constitutes patient and family-centred care
  • Ways to improve the patient experience
February 2016
Feb 5, 2016 3:13 PM

Told from a family member's perspective, this story demonstrates how elderly patients are at risk without reliable and continuous communication among the patient, their loved ones and the provider who is chiefly managing his or her care.

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All stories, All patient stories, Patient-provider relationship, Home care  
June 2015

Jun 30, 2015 3:44 PM

A father explains how his 18 month old daughter's hand injury turned into +50 hours in the emergency department, and how poor communication and suboptimal care made his family feel unheard and ignored.

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All stories, All caregiver stories, Hospital and acute care, Patient-provider relationship  

Jun 24, 2015 1:36 PM

Facing a cancer diagnosis and resultant radiation, a patient with special needs challenges the prescribed treatment plan with information and finds a more suitable course of action.

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All stories, All patient stories, Patient-provider relationship  
April 2014

Apr 15, 2014 11:34 AM

This narrative is written by the son of a woman who was in late stage Alzheimer’s disease and unable to express herself. The narrative shows some of the problems which may occur when the patient is unable to express herself in words or physical actions and the health care personnel, have limited knowledge, understanding, or experience of Alzheimer disease and related dementia.

What we learned:

The following are the observations of her son:

1. People with Alzheimer’s disease experience pain in exactly the same way and intensity as people without cognitive impairment; people with dementia simply lack the words and physical reactions to express the intensity of the pain they experience in ways that can be readily understood by healthcare providers
2. People with dementia must be accompanied by a caregiver/spokesperson to speak on their behalf or else a comprehensive medical dossier, which can speak to a medical specialist or hospital admissions
3. Healthcare personnel at all levels and specialities rarely have more than the most basic knowledge of the impact of dementia on the physical, mental, and psychological well-being of the frail elderly patient
4. Professional expectations/ financial remuneration for custodial/health care staff are much less for people working in long term care institutions than those for health care personnel working in hospitals

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All stories, All caregiver stories, Long-term care, Patient-provider relationship, Degenerative disorder  
March 2014

Mar 25, 2014 10:59 AM

This patient story is told from a spouse's perspective as he navigated Ontario's healthcare system alongside his wife as she received treatment for a rare form of leukemia. It highlights some of the challenges facing patients living with chronic conditions, such as poor coordination of care and gaps in communication.

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All stories, All patient stories, All caregiver stories, Patient-provider relationship, End-of-life care  
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